The Adolescent and Young Adult Gender Dysphoria Outcomes Study
From Dr. Lisa Littman
Dr. Littman has informed us that The Adolescent and Young Adult Gender Dysphoria Outcomes Study (AYAGDOS) is beginning a new wave of recruitment with a few updates. They are still seeking parents of gender-dysphoric youth (ages 13–21) and gender-dysphoric youth to participate in online surveys and follow-ups over the next few years. The primary change is that youth under 18 outside the USA and Canada now require parental permission to participate.
Attached is a Parent Flyer and Youth Flyer that Dr. Littman kindly asks you to consider sharing with your parent members.
The Adolescent and Young Adult Gender Dysphoria Outcomes Study (AYAGDOS) is open for recruitment. The purpose of this research is to learn about gender dysphoria in youth (13-21 years of age) with a focus on psychological well-being, family factors, sexual orientation, health care, and the course of gender dysphoria over time. We hope to enroll pairs of family members–one gender dysphoric youth and one of their parents/guardians–to complete a series of separate online surveys over a period of five years. However, participation of both family members is not required for most participants. An eligibility screening interview will be conducted by video conference call for the first potential participant from the same family to contact the research team. Research participation requires completing an Internet survey, is voluntary, and is not compensated.
Potentially eligible individuals are either: 1) a person who is 13-21 years of age and has gender dysphoria or 2) a person who is the parent of a 13-21 year old gender dysphoric youth. All participants must be English- speaking and live in one of the countries listed on the study website: WWW.AYAGDOS.ORG. These include the U.S., the U.K., Canada, Australia, and members of the European Union.
The study Investigators are J. Michael Bailey (Principal Investigator); Lisa Littman (Principal Investigator); and Kenneth J. Zucker (Co-Investigator). The Northwestern University IRB Study Number is STU00215665 and the BRANY IRB Study Number is 22-076-1188. For more information and to schedule a screening interview, please visit the study website WWW.AYAGDOS.ORG. Contact the research team at AYAGDOS@gmail.com
It’s telling that, “youth under 18 outside the USA and Canada now require parental permission to participate” in a survey, but NO parental permission is required to socially transition children. Insanity!!
I can see how it would be scientifically very valuable to enroll both the parent and the child. I’m scared though, that participating in the survey might re-focus the child on the gender feelings at a time when I’m treading very lightly avoiding the subject and hoping she might grow out of it.
How do other parents feel about this? Those of you who are lucky enough to not be estranged from your kids. Will you tell them about this survey?